Wednesday, July 17, 2013

Electronic data methods for health care research -- update from the EDM forum

Electronic data methods for health care research -- update from the EDM forum [ Back to EurekAlert! ] Public release date: 16-Jul-2013
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Contact: Connie Hughes
connie.hughes@wolterskluwer.com
646-674-6348
Wolters Kluwer Health

Supplement to Medical Care presents 'lessons learned' on using electronic clinical data to improve patient care

Philadelphia, Pa. (July 16, 2013) - Research using electronic clinical data (ECD) has the potential to make major contributions to health care research and improve patient outcomes. However, many complex issues remain unanswered. A special August supplement to Medical Care presents an update from the Electronic Data Methods (EDM) Forum, with a commissioned set of papers discussing "challenges and innovations from the research and QI community using ECD." Medical Care is published by Lippincott Williams & Wilkins, a part of Wolters Kluwer Health.

The supplement "highlights a set of useful and important lessons for building infrastructure to generate evidence and improve patient outcomes," according to an introduction by Erin Holve, PhD, MPH, MPP, of Academy Health, Washington, DC, and Ned Calogne, MD, MPH of the Colorado Trust, Denver. The EDM Forum is an initiative of AcademyHealth, the leading national organization serving the fields of health services and policy research, and is supported by the Agency for Health Care Research and Quality (AHRQ).

'Early Lessons Learned' on Using Electronic Health Data for Research

The goal of the EDM Forum is to advance knowledge and practice on the use of ECD for comparative effectiveness research (CER), patient-centered outcomes research (PCOR), and quality improvement (QI). The supplement is divided into sections corresponding to the four EDM Forum domains.

The section on Analytic Methods leads off with a paper on different approaches to adjusting for confounding variable in ECDa key problem in performing CER in research networks. Other contributions discuss standard methods for defining the critical issue of medication adherence and approaches to checking the quality of data used for CER.

Topics in the Clinical Informatics section include caveats for using invaluablebut potentially flaweddata from electronic health records. Another paper discusses some challenges and "best practices" for using these diverse and increasingly complex data sets for CER. An article comparing various standard formats for electronic exchange of clinical data concludes that, so far, none of the proposed models meets the complex data mapping requirements.

The section on Governance addresses ethical and informed consent issues related to the use of electronic data; the authors suggest that consent requirements could be loosened for some types of randomized trials with low risks of patient harm. Effective approaches to data sharing are reviewed, including the role of state-of-the-art privacy protection methods. A real-world experience with developing a multistate CER network emphasizes the need for a flexible, rather than a "one size fits all" approach.

The section Learning Health Systems discusses the use of patient-reported outcomes for PCOR truly and summarizes a real-world experience with using electronic health records for CER in four health systems. The final supplement paper looks toward the transformation from "evidence-based" to "evidence-generating medicine" in learning health systems.

The EDM Forum plays a leading role in efforts to share ideas and lessons learned among those involved in using electronic clinical data for continuous health care improvement. The EDM Forum's new open access journal eGEMs provides an ongoing source of peer-reviewed information, Drs. Holve and Calogne point out. They conclude, "By sharing these early lessons learned, we hope the national dialog facilitated by the EDM Forum is advancing the scientific evolution of multisite research using ECD in the service of improving patient outcomes."

###

About Medical Care

Rated as one of the top ten journals in health care administration, Medical Care is devoted to all aspects of the administration and delivery of health care. This scholarly journal publishes original, peer-reviewed papers documenting the most current developments in the rapidly changing field of health care. Medical Care provides timely reports on the findings of original investigations into issues related to the research, planning, organization, financing, provision, and evaluation of health services. In addition, numerous special supplementary issues that focus on specialized topics are produced with each volume. Medical Care is the official journal of the Medical Care Section of the American Public Health Association

About Wolters Kluwer Health

Wolters Kluwer Health is a leading global provider of information, business intelligence and point-of-care solutions for the healthcare industry. Serving more than 150 countries and territories worldwide, Wolters Kluwer Health's customers include professionals, institutions and students in medicine, nursing, allied health and pharmacy. Major brands include Health Language, Lexicomp, Lippincott Williams & Wilkins, Medicom, Medknow, Ovid, Pharmacy OneSource, ProVation Medical, and UpToDate.

Wolters Kluwer Health is part of Wolters Kluwer, a market-leading global information services company. Wolters Kluwer had 2012 annual revenues of 3.6 billion ($4.6 billion), employs approximately 19,000 people worldwide, and maintains operations in over 40 countries across Europe, North America, Asia Pacific, and Latin America. Follow our official Twitter handle: @WKHealth.


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AAAS and EurekAlert! are not responsible for the accuracy of news releases posted to EurekAlert! by contributing institutions or for the use of any information through the EurekAlert! system.


Electronic data methods for health care research -- update from the EDM forum [ Back to EurekAlert! ] Public release date: 16-Jul-2013
[ | E-mail | Share Share ]

Contact: Connie Hughes
connie.hughes@wolterskluwer.com
646-674-6348
Wolters Kluwer Health

Supplement to Medical Care presents 'lessons learned' on using electronic clinical data to improve patient care

Philadelphia, Pa. (July 16, 2013) - Research using electronic clinical data (ECD) has the potential to make major contributions to health care research and improve patient outcomes. However, many complex issues remain unanswered. A special August supplement to Medical Care presents an update from the Electronic Data Methods (EDM) Forum, with a commissioned set of papers discussing "challenges and innovations from the research and QI community using ECD." Medical Care is published by Lippincott Williams & Wilkins, a part of Wolters Kluwer Health.

The supplement "highlights a set of useful and important lessons for building infrastructure to generate evidence and improve patient outcomes," according to an introduction by Erin Holve, PhD, MPH, MPP, of Academy Health, Washington, DC, and Ned Calogne, MD, MPH of the Colorado Trust, Denver. The EDM Forum is an initiative of AcademyHealth, the leading national organization serving the fields of health services and policy research, and is supported by the Agency for Health Care Research and Quality (AHRQ).

'Early Lessons Learned' on Using Electronic Health Data for Research

The goal of the EDM Forum is to advance knowledge and practice on the use of ECD for comparative effectiveness research (CER), patient-centered outcomes research (PCOR), and quality improvement (QI). The supplement is divided into sections corresponding to the four EDM Forum domains.

The section on Analytic Methods leads off with a paper on different approaches to adjusting for confounding variable in ECDa key problem in performing CER in research networks. Other contributions discuss standard methods for defining the critical issue of medication adherence and approaches to checking the quality of data used for CER.

Topics in the Clinical Informatics section include caveats for using invaluablebut potentially flaweddata from electronic health records. Another paper discusses some challenges and "best practices" for using these diverse and increasingly complex data sets for CER. An article comparing various standard formats for electronic exchange of clinical data concludes that, so far, none of the proposed models meets the complex data mapping requirements.

The section on Governance addresses ethical and informed consent issues related to the use of electronic data; the authors suggest that consent requirements could be loosened for some types of randomized trials with low risks of patient harm. Effective approaches to data sharing are reviewed, including the role of state-of-the-art privacy protection methods. A real-world experience with developing a multistate CER network emphasizes the need for a flexible, rather than a "one size fits all" approach.

The section Learning Health Systems discusses the use of patient-reported outcomes for PCOR truly and summarizes a real-world experience with using electronic health records for CER in four health systems. The final supplement paper looks toward the transformation from "evidence-based" to "evidence-generating medicine" in learning health systems.

The EDM Forum plays a leading role in efforts to share ideas and lessons learned among those involved in using electronic clinical data for continuous health care improvement. The EDM Forum's new open access journal eGEMs provides an ongoing source of peer-reviewed information, Drs. Holve and Calogne point out. They conclude, "By sharing these early lessons learned, we hope the national dialog facilitated by the EDM Forum is advancing the scientific evolution of multisite research using ECD in the service of improving patient outcomes."

###

About Medical Care

Rated as one of the top ten journals in health care administration, Medical Care is devoted to all aspects of the administration and delivery of health care. This scholarly journal publishes original, peer-reviewed papers documenting the most current developments in the rapidly changing field of health care. Medical Care provides timely reports on the findings of original investigations into issues related to the research, planning, organization, financing, provision, and evaluation of health services. In addition, numerous special supplementary issues that focus on specialized topics are produced with each volume. Medical Care is the official journal of the Medical Care Section of the American Public Health Association

About Wolters Kluwer Health

Wolters Kluwer Health is a leading global provider of information, business intelligence and point-of-care solutions for the healthcare industry. Serving more than 150 countries and territories worldwide, Wolters Kluwer Health's customers include professionals, institutions and students in medicine, nursing, allied health and pharmacy. Major brands include Health Language, Lexicomp, Lippincott Williams & Wilkins, Medicom, Medknow, Ovid, Pharmacy OneSource, ProVation Medical, and UpToDate.

Wolters Kluwer Health is part of Wolters Kluwer, a market-leading global information services company. Wolters Kluwer had 2012 annual revenues of 3.6 billion ($4.6 billion), employs approximately 19,000 people worldwide, and maintains operations in over 40 countries across Europe, North America, Asia Pacific, and Latin America. Follow our official Twitter handle: @WKHealth.


[ Back to EurekAlert! ] [ | E-mail | Share Share ]

?


AAAS and EurekAlert! are not responsible for the accuracy of news releases posted to EurekAlert! by contributing institutions or for the use of any information through the EurekAlert! system.


Source: http://www.eurekalert.org/pub_releases/2013-07/wkh-edm071513.php

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